Voices from Beyond

It’s been a while since I’ve posted on my blog. I have a few updates since my last post. The rheumatology appointment went very well. The doctor was very pleasant. She did a full assessment of my feet and decided that I should have an MRI to rule out or rule in arthritis. She stated that she noted some fullness in my left ankle. It was a good appointment in the sense that I felt comfortable with her and the fact that she was hearing me. Sometimes I feel like the doctors don’t really hear me. My MRI is scheduled at Cooley Dickinson on July 15.th. As always, I anxiously await these results. I’ll keep you updated.

On Friday, June 21, the day of the Celtics parade I had an appointment for my bone density scan. David and I had decided to go into Boston on Thursday night and stay over to avoid the major traffic on Friday morning. My appointment was scheduled for 1:30p so we were really concerned about getting out of Boston with the parade happening. In the morning. David called the bone density scan department and asked if they had any cancellations that day so that we could go earlier believe it or not, they told us to come right on over so that I could get my scan. We were there at 9:30 AM and on the road home by 10 AM. We reached the camper at 11 AM and avoided all of the traffic. Unfortunately we were unable to take a peek at the parade, but we saw the highlights on TV. I recently saw the results of my bone scan in the patient portal and the determination is Osteoporosis. This means that I will need to have infusions once a year for three years as a treatment for this diagnosis. I’m definitely getting used to infusions. Bring it on!

We’ve been going to our camper every weekend. It is honestly like taking a little vacation. It is such a relaxing place to be. We spend time with friends and have a lot of laughs. David is on vacation this week for a few days and we are going to spend them at the camper. Fourth of July weekend should be fun. I’m looking forward to it.

I know that I had mentioned that I was going to write a letter to my donors family, unfortunately I have not started the letter. I’m not really sure what is holding me back I really want to write it. Maybe it’s my anxiety? I guess it will happen when I’m ready.

Sunday was my father’s birthday and I went to see a medium with my cousin Karen, Aunt Kathleen and Aunt Sheila. It was interesting. I really tried to be open. I mean it was his birthday so I was hoping to hear from him- that didn’t happen. She said he was there but I just didn’t feel it. I wanted to believe but it felt generic to me. I don’t know maybe I just wanted more. She did say that he liked my doctor. Well, maybe I should be more specific. She mentioned a father and hearts and I immediately thought she was referring to me. Heart transplant, Each 💔 Beat Matters- there are hearts all around me. I took the microphone and explained that I had a heart transplant last year. She said that he was there. She said it was a congenital condition ( which it was ) She said that I was Daddy’s little girl- he has too little girls but I’m one of them. He said that he likes my doctor and I like my doctor too ( which is right ) He said that I will get through this if I persevere ( or something like that)

And then she was done. I just didn’t really feel it but it’s okay. Maybe next time. We went to lunch after the show. I really enjoy spending time with family . Lots of laughs and lots of love. It’s so important for everyone to have a support system and I have the best! Thank you all so much!

Each 💔Beat Matters

KellyAnn