Just a quick update... My appointments have all been scheduled... David and I have a busy couple of weeks ahead of us. We are headed to Boston now as I have a heart transplant clinic visit tomorrow at 8am, followed by an echocardiogram at 9:30 and then a Reclast infusion at 1:30pm. I have a few days off and then we return to Boston on Sunday night. I have my Angiogram, biopsy and right heart catheterization procedure on Monday. We will stay overnight again because on Tuesday I have a Cardiac MRI and an EMG.
I am very anxiously awaiting the results of these diagnostic studies so that hopefully I will have answers to what is wrong with my new heart, why the prior exams showed abnormal findings and maybe why I'm not feeling well. It takes a lot out of me traveling back and forth to Boston but I will do whatever they instruct me to do. I want to get back to being me.
Yesterday I had a wonderful lunch with my Aunt Kathleen and my friend Kelly. We met at Cardiac rehabilitation and I'm so glad that we did. She had a heart transplant a year before me. She has been an inspiration to me. She is so strong. She gave me some encouraging advice- everyday think of something positive that has happened and take a minute to reflect back to see how far you've come. I often remind myself of all my blessings but when I'm not feeling well sometimes I get caught in that moment in time and I don't consider how far I've come. I have made the conscious decision to look back but keep moving forward. Thank you, Kelly!
Each š Beat Matters
KellyAnn
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Hopefully, your team will figure it out and be able to get you on the healing road! Iām sorry you are having to endure so much ā¦ but youāre here and thatās what matters most! One day at a time ā¦ with lots of love and prayers ā¦. š ā¦ š ā¦ š
Its natural to to get caught up in the moment. I hope those moments that reveal the blessings you have with David and your extended family push you towards your safe space. Keep your endearing spirits moving forward. I pray for healthy healing. .ā¤..ā¤..ā¤
Thinking of you often & praying that all this is worth it. I donāt know how you are getting through this. Be strong.šššš»šš»
Good luck tomorrow ! I love you ā¤ļø and Iāll see you Thursday š