Just a quick update... My appointments have all been scheduled... David and I have a busy couple of weeks ahead of us. We are headed to Boston now as I have a heart transplant clinic visit tomorrow at 8am, followed by an echocardiogram at 9:30 and then a Reclast infusion at 1:30pm. I have a few days off and then we return to Boston on Sunday night. I have my Angiogram, biopsy and right heart catheterization procedure on Monday. We will stay overnight again because on Tuesday I have a Cardiac MRI and an EMG.
I am very anxiously awaiting the results of these diagnostic studies so that hopefully I will have answers to what is wrong with my new heart, why the prior exams showed abnormal findings and maybe why I'm not feeling well. It takes a lot out of me traveling back and forth to Boston but I will do whatever they instruct me to do. I want to get back to being me.
Yesterday I had a wonderful lunch with my Aunt Kathleen and my friend Kelly. We met at Cardiac rehabilitation and I'm so glad that we did. She had a heart transplant a year before me. She has been an inspiration to me. She is so strong. She gave me some encouraging advice- everyday think of something positive that has happened and take a minute to reflect back to see how far you've come. I often remind myself of all my blessings but when I'm not feeling well sometimes I get caught in that moment in time and I don't consider how far I've come. I have made the conscious decision to look back but keep moving forward. Thank you, Kelly!
Each 💔 Beat Matters
KellyAnn
Hopefully, your team will figure it out and be able to get you on the healing road! I’m sorry you are having to endure so much … but you’re here and that’s what matters most! One day at a time … with lots of love and prayers …. 💕 … 🍀 … 🙏
Its natural to to get caught up in the moment. I hope those moments that reveal the blessings you have with David and your extended family push you towards your safe space. Keep your endearing spirits moving forward. I pray for healthy healing. .❤..❤..❤
Thinking of you often & praying that all this is worth it. I don’t know how you are getting through this. Be strong.😍💚🙏🏻🙏🏻
Good luck tomorrow ! I love you ❤️ and I’ll see you Thursday 😘