I got through last week with my multiple appointments but it just keeps going...this week I have 1 appointment on Monday, 1 appointment on Tuesday - in Boston (with Neurology), 2 appointments on Wednesday and 1 appointment on Thursday. My appointment at the heart transplant clinic wasn't very good. I was seen by a Cardiologist that I hadn't met before and we just didn't connect. She really didn't listen to me or David and gave me very vague instructions pertaining to my medications. We left the office more confused than ever before. She did however refer me to a Neurologist to evaluate my feet and ankle pain. This is my Tuesday appointment. I'm really hoping they can assist with this discomfort because I've been suffering for 2 months now. I'm having difficulty ambulating and recently purchased a cane to use when I'm walking. The cardiopulmonary stress test results were not available yet so I'm still anxiously waiting. I started the new slow release anti rejection medication Envarsus. I'm tolerating it but I haven't noticed any improvement in my symptoms yet although I'm still hopeful!
Thursday I had a meeting with Dermatology. I am required to get a full body check yearly because the anti rejection medications put you at a higher risk for cancer especially Melanoma. It went well but she did take a biopsy from my right calf. One more thing to worry about. I'm trying to keep my thoughts certain for a positive outcome!
I'm feeling accomplished. I completed printing my medical records from Mass General and I put everything together to submit my application to the Social Security Administration. David will drop it off for me this week. I guess we will see what happens next... just a little reading material for them...
Each 💔 Beat Matters
KellyAnn
Wow! That is a lot of paper. Depending on fast someone reads it’s going to take awhile. I hope they are intelligent enough to realize you are disable. And should be put on immediately. You have a lot of stamina to keep up with all your appointments and especially not feeling good. I pray things get better for you.🙏🙏🙏🙏❤️
(past)..
Although your words are layered in frustration, they are words that are encouraging to this reader. It shows us all that your will to inform us is only surpassed by your will to get passed these difficult days. Thank you for being you. Better days are coming..❤❤
There is something to say about telling yourself there are people that are worse off than you. But there are other times that it just gets to you! You have faced more than most and you always find the strength to get through it! We are all pulling for you, praying for you, sending love. 💕
You are a trooper Kellyann! I know it’s hard but stay positive! You will beat this like you have your
entire life 😘