Working it!

I had a good appointment with the heart transplant clinic on Tuesday. We discussed the fact that I have not been feeling well lately and I feel that I'm at a plateau in my recovery. We discussed my symptoms- headaches, hot flashes, chills, shakiness, tremors, fog brain, nausea, upset stomach, rib and chest pain with extreme fatigue. They have recommended changing my anti rejection medications to a longer acting one with equivalent properties. I was concerned at first because I was told that any changes of medications would have inferior effects but I was reassured that isn't the case with these particular medications. I'm willing to try anything.

The team will also be checking multiple blood levels and a CPET ( exercise stress test) to evaluate my heart. I'm very pleased that they are investigating my symptoms further and looking for alternative treatments to help me feel better.

Yesterday I had cardiac rehab and again I feel that I did a little better than the last session . Baby steps are appropriate for this challenge. I did some upper body repetitions and I'm really feeling it today in my ribs and sternum. I will probably take it a bit easier on the upper body next week but I will keep putting the work in. I want to get stronger! I was also notified by the heart transplant team that my Tacrolimus level was 7.9 which is low and I was instructed to adjust my dose to 2mg in the morning and 2.5mg in the evening. I am also iron deficient and I will require an iron infusion in the near future. This result could definitely be contributing to my symptoms. Last but most importantly my biopsy results were 0 R0 which is NO REJECTION!!! I would dance around if I could 💃!!! I'm so grateful!!

Each ❤️ beat matters

KellyAnn