I know that I posted very early this morning but I want to tell you about my day. I have not slept since 4am this morning. Exhausted beyond belief...
I was called for my biopsy procedure around 9:30am woohoo I don't need to starve all day. However, my appetite is minimal at this time due to the anti rejection medications. My abdomen is so bloated that I can not fit anything in there. The X-ray that they took did not show anything physical causing it but I know that something isn't right. I will ask them to investigate further tomorrow. I think I may be bowel stuck again but I'm doing everything they have suggested or thrown at me - bring it on!!
The procedure went well and the measurements they were looking for were great according to what they tell me. The next step is the pathology results to know information about if my special heart is rejecting. Fingers crossed everything is status que in there .
When I returned from the procedure pleasantly loopy 😜 due to the little sedation that they so kindly gave me. I was visited by my aunt Kathleen and an uncle Paul. I love visitors and thank each and every person that has stopped in to see me. It was a wonderful visit but they could tell that I was really tired. I then had a physical therapy evaluation. Walking around the unit was not too bad and I was able to tolerate it well. However, when I did the stairs I was slapped in the face with a reality that I did not expect.! My legs did not want to work like they used to. They were shaking and I thought they would give out. This is going to take a lot of work. We have also decided to buy some rails for the shower and stairs, maybe even a shower chair for my safety. I have been a nurse for 30 years and I never thought that at 54 years old I would even be considering these types of purchases. It's better than the alternative and I know that I will get there!!!! It's just so emotional and I feel bad for David as he my rock and helps me with everything. I'm so lucky to have him. I will never take him for granted. He doesn't hesitate to hold me when I need it and support me when I'm tired. I love him so much ❤️ He is selfless ❤️ I'm crying now...my life is hard right now but so beautiful!
I know that doesn't sound like a busy day but for me it really took everything that I have and I just want to sleep for days 💤
Tomorrow will be another busy day. I am hoping to get these tubes removed from my chest and hopefully the pacer wires as well. I am wishing this will help to feel even the slightest bit better.
I have to say that I am pretty impressed with my progress despite the awful side effects that I am struggling with.
Each ❤️beat matters
Love,
KellyAnn
🙏🏻❤️❤️❤️🙏🏻🤞🤞
Stay strong Kelly each day will get better and soon you will be home. You are right about David, he is a very loving, caring person and so are you. You compliment each other. Praying for you❤️😘
KellyAnn you are the strongest person I know! I am so happy you have David there by your side to help you through this difficult time. The love you share for each other fills my heart. I am happy you found each other! Hopefully with more fiber & regular bowel movements you will feel better. Hard to eat when you are so bloated, Sending love & prayers! We will be there to see you soon! I love you! Thank you David! ❤️🙏🥰😘
You are doing so much better than you are giving yourself credit for! Go easy on yourself. You are managing to make incredible strides every day when just being here is enough! So proud of you and hope that you feel comfort soon!
I can’t ever imagine how hard your struggle is 😘But I’ve seen you do this throughout your entire life, survival at3-4 , childbirth, RSD (for years ) cardiac arrest and you tackle all of it ! There’s a plan for you Kellyann 💕🤟