I'm still feeling the same, yuck! I'm listening to my body and lounging as much as I possibly can but I refuse to lay in bed all day. Bella has been keeping me company. She loves to cuddle. I undoubtedly think that I feel this way due to a combination of the medication side effects and my body recovering from a major surgery- it will just take time. I know that my new heart is strong because I can feel it beating so powerfully. It is the most incredibly amazing feeling ever! I'm so lucky to be the recipient of such a beautiful miracle!
Tuesday was lab day. Elizabeth brought me to Cooley Dickinson and in the evening David, Molly and I went out to vote.
Wednesday I didn't leave my house - just lazing around all day. The heart transplant team contacted me to inform me that my Tacrolimus level was high again at 11.6. I was instructed to decrease my dose to 2mg twice a day. The rest of my labs look good. They will repeat my bloodwork next week during my biopsy procedure on Tuesday.
Today was my first day at Cardiac Rehab. The staff there is so nice and they were very excited to see me. It wasn't easy but I did what I could. I was able to walk for 5 minutes on the treadmill at a steady pace then I tried the recumbent bike but I only made it 3 minutes until I was short of breath, weak and shaky so I had to stop and take a break to recover and then I completed another 2 minutes. I was exhausted and thoroughly spent after that. I then finished my session. I will be attending twice a week moving forward. I am experiencing increased fatigue, chest and rib discomfort since my workout but I am looking forward to working hard and getting better ❤️🩹
Each 💔 beat matters
KellyAnn
It must be so difficult getting used to the new norm...but as you said you are putting in the work. I believe that they will not overwork you. Doing this new Cardiac rehab, like any rehab will get easier and will only strengthen you moving forward. Take the small blessings . Bella knows you need her. Your inner circle of friends and family are in this journey with you, as are the many of us who are just listening and offering good will. Keep your spirits high. You have come so far. .hugs..❤❤
I love 💕 you ! AGAIN I will say you are the strongest person I know ! You are so grateful, humble and caring we don’t even know the half of your daily struggles 😭You just take it in stride and work hard to honor your special heart 💜