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Writer's picturekscott66814

Productive Maybe?

I've been feeling some ups and downs the past few days. Monday evening we got our COVID 19 vaccine and Lauren and the girls came over to hang out. I love it when they come over. I don't get to see them as much these days ❤️

Tuesday Elizabeth brought me for my weekly bloodwork at Cooley Dickinson. I woke up with a headache along with my usual sode effects and as the day progressed I felt generally achy. I figured it was due to the vaccine so my day was spent resting. I am still having left rib pain but thankfully my chest CT is scheduled for next Thursday. I was feeling frustrated and anxious because of the additional symptoms I was experiencing. I remember that one of my doctors had said that getting a heart transplant was exchanging one illness for another. I refuse to believe this and I know that things will get better. I have already made so much progress. I will continue to fight through the tough days.

Wednesday I went shopping with my Aunt for a little while. I was exhausted buy the time I got home but pleased that I got some retail therapy.

The heart transplant team contacted me in regards to my lab results. My Tacrolimus level was 13 .1 so I was instructed to decrease my morning dose to 2mg and continue my evening dose of 3mg until my next lab draw next week. The rest of my labs were within normal limits. I am to continue all other Medications as prescribed.

Today I'm feeling a little worse for wear. I'm exhausted. I'm shaky inside and out. My tremors are pronounced and I'm having waves of nausea along with a foggy head. My mother, sister and Darlene did visit me today for a while and I went for a walk with David and Bella when he got home from work. I was as productive as I could be. The remainder of tonight will be spent loafing around.

Each ❤️ beat matters

KellyAnn





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5 Comments


Deb baker
Oct 27, 2023

Loafing helps us reset ourselves 💕 It always helped when we worked nights 🤪

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kscott66814
kscott66814
Oct 28, 2023
Replying to

😂😂 miss you!

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If it helps, I wasn’t feeling well Tuesday so I loafed around lol. We need a loafing day, all day while Elizabeth waits on us. What do you think? How long will you need to take Tacrolimus? Being the rockstar that you are is tough work work lady, down days aren’t the worst thing but even feeling down, you managed to do a lot of activities 😁❤️

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kscott66814
kscott66814
Oct 26, 2023
Replying to

I would loaf around with you anytime lol. I try not to let it ruin my whole day and I’m trying to do more. I keep thinking it will help me feel normal. I will be on Tacrolimus for the rest of my life hopefully my body will get used to it.

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Elizabeth Curley
Elizabeth Curley
Oct 26, 2023

Loaf around all you want , a couple weeks til cardiac rehab , I’m sure that will have positive impact on your health . Stronger every day ❤️

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