The results are in and I'm happy to say "NO REJECT" on my biopsy. My beautiful new heart is going strong and my body seems to be accepting it. What a true miracle! I am so grateful! I just need my body to accept these medications and maybe I will start to feel healthier and more like my old self.
My lab work was also negative for Lupus and Gout. My Rheumatoid factor was normal so we will continue to explore reasons for what is causing my bilateral feet and ankle pain. The pain is impairing my ability to ambulate and decreasing my activity level. I've been pushing through the pain for a few weeks now and it's starting to break me a little. I am really wishing for an effective solution for all of my symptoms but especially this one. I will be referred to a Rheumatologist and I was started on Gabapentin 100mg at bedtime. My doctor is going to switch my current short acting Tacrolimus to a slow release Tacrolimus called Envarsus but this can't be done until my Tacrolimus level is stable and unfortunately, right now it is low at 7.4 so I will need to wait a bit.
I have also been waiting for an appointment with Endocrinology. I was referred back in October. I called the booking department on Friday to check on the status of the consult and they explained that they are having a scheduling delay but she was happy to provide me with a date while I was on the phone. Guess what, my appointment is Monday! Crazy right? The purpose of this consultation is because endocrine complications such as diabetes and osteoporosis are common after heart transplant which require lifelong monitoring and management. I was told by the team that the Endocrinologist will order a full body bone scan. Could this help identify the cause for my body aches, joint pain as well as my feet and ankle pain? Here's to optimistic hopefulness! Unfortunately , the weather is not on our side as we are expecting snow on Sunday into Monday so David and I have decided that it will be best if we head to Boston on Sunday so that we are safely there and not stuck in snow traffic on Monday morning. I will continue to be positive and confident about the future and try not to let my anxiety get the best of me despite the physical symptoms, discomfort and pain. I will get through this and get back to being me. I am so appreciative of everyone's encouraging and supportive words expressed especially on my tough days! Thank you all so much!
Each 💔beat matters
KellyAnn
My pharmacy ...it's a full time job
Sending love to you & David! Happy to hear your new heart is not being rejected and going strong! Praying everything else settles and you feel better. Love you KellyAnn! ❤️
Hope all your dreams come true ? You certainly deserve the best in life. Love you so much.💗🙏🏻🙏🏻
Good to hear your appointments are lining up. Im encouraged that you can keep a clear thought going with all that medication . Figuring out all those meds must present so many challenges. Figuring out what med is contributing to certain side effects must be never ending. I hope you receive some encouraging news on this evaluation. Keep that positive spirit moving forward. ❤
Great news with all the current labs that’s a lot of medicine you are so awesome 😎 💕 you KellyAnn
That is great news on your heart ♥️ my oh my all that medication you take. I thought I had a lot when I had cancer but you top it. I hope the scan will show what’s causing the pain in your foot. But it could be one of your medications. I had to stop one because it was damaging my heart along with chemo (which I also had to stop) It is now 8 years(hard to believe) cancer free and going on 87. And down to taking 2 medication and taking gabapentin for the knees at night. Amen. Hopefully you will get to that point where you will need only one pill box for the week. I …