I'm still feeling the same but again I'm not getting worse so I'll just tough through it. Monday we went to Mass General Hospital to have my echocardiogram. The travel there was good and the traffic was smooth. The test itself went well and took about 20 minutes. The technician that preformed it was very sweet. I was not nervous about this diagnostic test at all. I received the results on Tuesday when the heart transplant nurse called to let me know that everything looked good and the team is very pleased with the results. My heart function increased from 66%-67%. Fantastic news!
On Tuesday morning I woke up with a sinus headache on top of all the other symptoms that I have been experiencing. I sent a message to the team through the patient portal and inquired if I am able to take Zyrtec or any other allergy medication as I have been wondering if these symptoms that I have been dealing with might be allergies. I've struggled with seasonal allergies in the past. They approved the Zyrtec and I started taking it yesterday. My headache went away. I will continue to monitor the other symptoms. I'm beginning to get a little discouraged. I think I just want to turn a corner and feel more like myself again.
Tuesday Elizabeth took me for my weekly bloodwork at Cooley Dickinson Hospital. I wasn't feeling well so our day consisted of resting and watching past seasons of Project Runway. One of my very favorite shows!
This morning I received a call from the heart transplant team with my lab results. My Tacrolimus level is low @ 9.5 so I've been instructed to continue with my morning dose of 2.5mg and increase my night dose to 3mg. Unfortunately increasing my Tacrolimus will increase the intensity of my usual symptoms. The rest of my labs were within normal limits and my white blood cell count decreased a bit. I'm feeling relieved that all of my results are positive!
One minute at a time, one hour at a time and one day at a time!
Each 💔 Beat Matters
KellyAnn
Happy for the good news❤️ And you look marvelous, darling.❤️
Kelly Ann you are a fighter, I remember meeting you through Baystate and Auntie Kathy I read your updates every time you post you are an inspiration ♥️♥️♥️
So happy your heart is settling in … up Is up! I know it’s not easy … Love you KellyAnn 💕
So happy to hear your doing better. Each day is a challenge but your always so strong. What else can you do right?? So proud of you Kelly. If you need me please call & I’ll be there.💚🙏🏻🙏🏻
You look great!!